Posted by: myroadtoemmaus | October 31, 2010

curve ball

48 hours ago, Hannah and I were on our way to “Dr. T’s” office to receive a second opinion.  At Hannah’s routine appointment on Wednesday, I asked her pediatrician about the size of her not-so-little tummy.  It was seemingly disproportionate to her body and I was starting to wonder if it had anything to do with the excessive spitting up and plethora of gas.  A quick glance by Dr T. validated my concerns and she sent us straight to the hospital for an x-ray.  The results confirmed the doctor’s suspicion but she needed more information.  She sent us to a different hospital for a barium enema in order to gain a closer look at what was going on inside Hannah’s intestines and colon.  The radiologist suspected a similar condition as Dr. T, known as Hirschsprung’s Disease, which is caused by an absence of nerve cells in the lower intestines.  Without these nerve cells receiving signals from the brain, the intestines can become stopped up, thereby confirming why Hannah has not had many dirty diapers and is bloated with gas.

However, Hirschsprung’s Disease can only be diagnosed after a biopsy.  Since it was Friday afternoon at this point and due to the risk of infection, the radiologist sent us to the ER where Hannah as then admitted to Children’s Mercy Hospital for the weekend.

So, that leads us to today.  I’m sitting in a rocking chair watching my baby try to sleep with a half dozen wires and tubes attached to her body including a suction tube taped across her face and down her nose.  Though she is hooked up to an IV, she has been ordered to not have anything given to her by mouth meaning that she is starving.  Even when she does fall asleep, she wakes herself up and starts to cry every few minutes because of how hungry she is.  It is heart-wrenching to watch.

We are praying for a quick diagnosis and plan of action.  Mostly, we are praying for Hannah to be healed and for us to be able to take her home.  Though the doctors and nurses at the hospital have far exceeded our expectations, we just want to be home with our baby girl.  I have spent much of the last 48 hours in tears watching Hannah suffer and not being able to do anything about it.  However, I know that this temporary trial is a means to a better end and I know without a doubt that God is in this.  He’s here.  He’s watching over Hannah.  And He’s watching over us.  Best of all, I know that He is leading me.  Just as He led me to seek out a second opinion, He will lead us through this.  For as it says in Isaiah 40:11- God gently leads those who are with young.


our sweet Hannah


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Responses

  1. We are thinking of all of you! Sending healing prayers your way!

  2. Eliza Joy, Russell and Hannah. Thank God you did exactly the right thing and took Hannah to be checked. She is exactly where she need to be right now. Don’t forget to take care of yourselves in this process and let the medical staff do their thing with you sweet baby. Love you. Tyhe Weltmans

  3. I know little Hannah will come out of this a healthy, happy baby! Why? Because she has so much love around her… My prayers to your family.

  4. We are praying for all 3 of you.


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